Personal profile
Summary
A developmental psychologist, I am a Senior Lecturer in Psychology with expertise in autism and neurodiversity. My academic background includes psychology, education, public policy, and disability studies, with additional publications in anthropology, medicine, and neuroscience reaching diverse audiences and readerships.
Biography
After becoming aware of the neurodiversity and disability rights movements in 2007, I became involved in advocacy on developmental disabilities and speaking and research on autism. I graduated from the University of Southern California with a BSc in Public Policy, and served on California state projects to support people with learning disabilities' transition to competitive, integrated employment from 2010 to 2016. As director of science in the Autistic Self Advocacy Network, I substantially influenced the revision of autism's diagnostic criteria in the DSM-5. As a MA (2013) and PhD (2016) student in Human Development and Psychology within Education at University of California, Los Angeles, I began to research and teach on autism and neurodiversity. This included first authorship on a study on autism and the neurodiversity movement in Developmental Psychology that presented the first known direct comparison of autistic and non-autistic people's attitudes toward autism, and provided evidence on both the views and influence of the movement.
My postdoctoral career has taken place in the UK. As a Research Fellow on the Wellcome Trust-funded project Exploring Diagnosis: Autism and Neurodiversity at the University of Exeter (2016-2019), I published research on all dimensions of the project (diagnosis as a process and category, and the consequences of diagnosis). This included producing the edited collection Autistic Community and the Neurodiversity Movement: Stories from the Frontline, the first history of the neurodiversity movement by first-hand accounts of advocates and activists. In October 2019 I joined this school as a Lecturer.
Research Interests
Generally my research has consisted of attempts to understand autism and means of supporting autistic people. I feel passionate about the quality of life of autistic people, both in subjective well-being and practical life domains such as healthcare and employment. Autistic traits fall within my keen interests as well, including how behaviours such as stimming (repetitive movements and vocalisations) and averted eye contact may serve as functional coping mechanisms. Furthermore, identity, rights, and support needs of autistic people sit comfortably within my lines of research.
Such research has taken a variety of forms, such as qualitative, quantitative, and mixed methods, and ranging from community-based participatory research to new conceptual syntheses and frameworks.
I am Co-Coordinator of the School's Research Seminar Series. I am on the board of the journals Autism in Adulthood, Autism, and Neurodiversity. I also serve on the Scientific Programming Committee of the International Society for Autism Research.
Teaching Responsibilities
I coordinate the new Neurodiversity Studies module for the MSc in Psychology and Learning Disability. I also lecture on the third-year module Social Construction of Disability for the BSc (Hons) in Psychology.
I supervise students for the BSc (Hons) in Psychology and for the MSc in Psychology and Learning Disability and tutor students for the MSc course.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
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SDG 10 Reduced Inequalities
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SDG 16 Peace, Justice and Strong Institutions
Fingerprint
- 1 Similar Profiles
Collaborations and top research areas from the last five years
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Identifying as autistic without a formal diagnosis: who self-identifies as autistic and why?
Ahuvia, I., Gurbuz, E., Cuda, J., Kapp, S. K., Houck, A., Gates, J. A., Schleider, J. L. & Gurba, A. N., 22 Jan 2026, (Early online) In: Autism in Adulthood.Research output: Contribution to journal › Article › peer-review
Open AccessFile14 Downloads (Pure) -
The neurodiversity movement vs. the medical model of autism
Kapp, S. K., 1 Jun 2026, In: World Psychiatry. 25, 2, p. 322-323Research output: Contribution to journal › Comment/debate › peer-review
Open Access -
The role of family in autistic students’ higher education journeys: a scoping review
Lim, E., Kapp, S. K., López, B. & Gurbuz, E., 1 Apr 2026, (Early online) In: Review Journal of Autism and Developmental Disorders.Research output: Contribution to journal › Article › peer-review
Open AccessFile2 Downloads (Pure) -
Autismus und herausfordernde Umgebungen: Auf dem Weg zu einer stärkenorientierten Ethik des Flourishing
Ahmetovic, M. & Kapp, S. K., 19 Aug 2025, EEO Enzyklopädie Erziehungswissenschaft Online. Weinheim und Basel: Beltz Juventa Verlag, 12 p. (Enzyklopädie Erziehungswissenschaft Online).Translated title of the contribution :Autism and Challenging Environments: Towards a Strengths-Based Ethics of Flourishing Research output: Chapter in Book/Report/Conference proceeding › Entry for encyclopedia/dictionary
Open Access -
Bridging neurodiversity and Open Scholarship: how shared values can guide best practices for research integrity, social justice, and principled education
Phan, J. M., Middleton, S. L., Azevedo, F., Iley, B. J., Grose‐Hodge, M., Tyler, S. L., Kapp, S. K., Yeung, S. K., Shaw, J. J. & Hartmann, H., 1 Dec 2025, In: Journal of Social Issues. 81, 4, 17 p., e70035.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Downloads (Pure)
Projects
- 1 Finished
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Supporting autistic students through university using a collaborative participatory research approach
Gurbuz, E. (PI), Kapp, S. (CoI) & Lopez, B. (CoI)
1/04/21 → 1/03/24
Project: Research
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High quality communication in primary care for ND people
Kaklamanou, D. (Organiser), Fasulo, A. (Organiser) & Kapp, S. (Organiser)
10 Mar 2026Activity: Participating in or organising an event types › Participation in workshop, seminar, course
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Oral Presentation at the Atypical Interaction Conference
Trojan, M. (Speaker), Nomikou, I. (Speaker), Fasulo, A. (Speaker) & Kapp, S. (Speaker)
Jun 2025Activity: Talk or presentation types › Oral presentation
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Autism in Adulthood (Journal)
Kapp, S. (Editorial board member)
2018 → …Activity: Publication peer-review and editorial work types › Editorial activity
Press/Media
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Meet the autistic scientists redefining autism research
10/06/20 → 11/06/20
2 items of Media coverage
Press/Media: Research cited
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The Painful, Lonely Lives of Seniors With Autism
29/03/20
1 item of Media coverage
Press/Media: Expert comment
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Rethinking repetitive behaviors in autism
25/11/19
1 item of Media coverage
Press/Media: Research cited