Steven Kapp

2025

Consensus on high priority outcomes to be used in the evaluation of services for autistic adults: results from a “CBPR-Nested Delphi Process”

Nicolaidis, C., Scharer, M., Raymaker, D. M., Vera, J., Edwards, T., Moura, I., Baker-Ericzén, M., Maslak, J., Yang, L.-Q., Kripke-Ludwig, R., Kapp, S. K., Joyce, A. & Wallington, A., 30 Jan 2025, (Accepted for publication) In: Autism.

Research output: Contribution to journal › Article › peer-review

Exploring the social and emotional impact of puberty and adolescence on autistic people assigned female at birth

Fearon, B., Pearson, A. & Kapp, S. K., 21 Mar 2025, (Early online) In: Autism in Adulthood.

Research output: Contribution to journal › Article › peer-review

Open Access

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Guidelines for the creation of accessible consent materials and procedures: lessons from research with autistic people and people with intellectual disability

Working to Increase Inclusivity in Research Ethics (WIRE) Consortium & Kapp, S. K., 19 Feb 2025, (Early online) In: Autism in Adulthood.

Research output: Contribution to journal › Article › peer-review

Open Access

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10 Downloads (Pure)

Neurodiversity movement identification and perceived appropriateness of terms used to describe autism

Dwyer, P., Hersh, L. H., Kapp, S. K., Rivera, S. M. & Gillespie-Lynch, K., 22 Apr 2025, (Early online) In: Autism in Adulthood.

Research output: Contribution to journal › Article › peer-review

Open Access

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96 Downloads (Pure)

Oxytocin in autism: rethinking treatment and research through a neurodivergent perspective

Phan, J. M., Dwyer, P., Elsherif, M. M., Friedel, E. & Kapp, S. K., 1 Jan 2025, In: Psychoneuroendocrinology. 171, 8 p., 107220.

Research output: Contribution to journal › Article › peer-review

Open Access

Sensory–movement underpinnings of lifelong neurodivergence: getting a grip on autism

Kapp, S. K., 14 Apr 2025, In: Frontiers in Integrative Neuroscience. 19, 27 p., 1489322.

Research output: Contribution to journal › Article › peer-review

Open Access

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72 Downloads (Pure)

Using Q methodology, a group of neurodivergent neurodiversity researchers ask: what is the neurodiversity movement and what should it do?

Stenner, P., Pearson, A., Kapp, S. K., Watson, C., Pressler, R., Williams, G., Bertilsdotter-Rosqvist, H., Hultman, L., Semmens-Wheeler, R. & Botha, M., 4 Mar 2025, (Accepted for publication) In: Neurodiversity.

Research output: Contribution to journal › Article › peer-review

2024

Community member views on autism intervention: effects of closeness to autistic people with intellectual disabilities and nonspeaking autistic people

Hersh, L., Dwyer, P., Kapp, S. K., Shevchuk-Hill, S., Gurba, A. N., Kilgallon, E., Mair, A. P. A., Chang, D. S., Rivera, S. M. & Gillespie-Lynch, K., 4 Sept 2024, In: Autism in Adulthood. 6, 3, p. 253 - 271

Research output: Contribution to journal › Article › peer-review

Open Access

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54 Downloads (Pure)

Community views of neurodiversity, models of disability and autism intervention: mixed methods reveal shared goals and key tensions

Dwyer, P., Gurba, A. N., Kapp, S. K., Kilgallon, E., Hersh, L., Chang, D. S., Rivera, S. M. & Gillespie-Lynch, K., 18 Sept 2024, (Early online) In: Autism.

Research output: Contribution to journal › Article › peer-review

Open Access

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138 Downloads (Pure)

Recognizing and resisting ableist language in schools: suggestions for school-based speech-language pathologists and related professionals

Bottema-Beutel, K., Sasson, N. J., McKinnon, R., Braun, C., Guo, R., Hand, B. N., Kapp, S. K., Espinas, D. R., Bailin, A., Lester, J. N. & Yu, B., 7 Oct 2024, In: Language, Speech, and Hearing Services in Schools. 55, 4, p. 1025-1038 14 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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120 Downloads (Pure)

2023

Anti-ableism and scientific accuracy in autism research: a false dichotomy

Bottema-Beutel, K., Kapp, S. K., Sasson, N., Gernsbacher, M. A., Natri, H. & Botha, M., 8 Sept 2023, In: Frontiers in Psychiatry. 14, 8 p.

Research output: Contribution to journal › Article › peer-review

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111 Downloads (Pure)

Autistic students’ experiences, opportunities and challenges in Higher Education in Singapore: a qualitative study: A Qualitative Study

Lim, E., Wong, S., Gurbuz, E., Kapp, S. K., López, B. & Magiati, I., 10 Aug 2023, In: Education Sciences. 13, 8, 18 p., 818.

Research output: Contribution to journal › Article › peer-review

Open Access

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242 Downloads (Pure)

Centering the inner experience of autism: development of the self-assessment of autistic traits

Ratto, A., Bascom, J., daVanport, S., Strang, J. F., Anthony, L. G., Verbalis, A., Pugliese, C., Nadwodny, N., Brown, L., Cruz, M., Hector, B. L., Kapp, S. K., Onaiwu, M. G., Raymaker, D. M., Robison, J. E., Stewart, C., Stone, R., Whetsell, E., Pelphrey, K. & Kenworthy, L., 13 Mar 2023, In: Autism in Adulthood. 5, 1, p. 93-105 13 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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7461 Downloads (Pure)

Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students

Oredipe, T., Kofner, B., Riccio, A., Cage, E., Vincent, J., Kapp, S. K., Dwyer, P. & Gillespie-Lynch, K., 1 Jan 2023, In: Autism. 27, 1, p. 200-212

Research output: Contribution to journal › Article › peer-review

Open Access

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342 Downloads (Pure)

Ethical challenges in autism genomics: Recommendations for researchers

Natri, H. M., Chapman, C. R., Heraty, S., Dwyer, P., Walker, N., Kapp, S. K., Dron, H. A., Martinez-Agosto, J. A., Mikkola, L. & Doherty, M., 1 Sept 2023, In: European Journal of Medical Genetics. 66, 9, 9 p., 104810.

Research output: Contribution to journal › Article › peer-review

Open Access

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55 Downloads (Pure)

Exploring the experiences of autistic transgender and non-binary adults in seeking gender identity health care

Bruce, H., Munday, K. & Kapp, S. K., 13 Jun 2023, In: Autism in Adulthood. 5, 2, p. 191-203

Research output: Contribution to journal › Article › peer-review

Open Access

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Opening up understanding of neurodiversity: a call for applying participatory and open scholarship practices

Gourdon-Kanhukamwe, A., Kalandadze, T., Yeung, S. K., Azevedo, F., Iley, B., Mai Phan, J., Ramji, A. V., Shaw, J. J., Zaneva, M., Dokovova, M., Hartmann, H., Kapp, S. K., Warrington, K. L. & Elsherif, M. M., 20 Mar 2023, In: Cognitive Psychology Bulletin. 8, p. 23-27

Research output: Contribution to journal › Article › peer-review

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Profound concerns about “profound autism”: dangers of severity scales and functioning labels for support needs

Kapp, S. K., 19 Jan 2023, In: Education Sciences. 13, 2, 20 p., 106.

Research output: Contribution to journal › Article › peer-review

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Updates to the Autism Intervention Research Network on Physical Health (AIR-P) Research Agenda

Hotez, E., Haley, M., Martinez-Agosto, J. A., Anderson, J., Brown, H., Choi, K., Croen, L. A., Dwyer, P., Fernandes, P., Gassner, D., Giwa onaiwu, M., Gragnani, C. M., Graham holmes, L., Kapp, S., Kim, D., Massolo, M., Montgomery, B., Natri, H. M., Rava, J. A. & Rosenau, K. A. & 8 others, Roth, J., Rudolph, D., Ryan, J. G., Shattuck, P., Shea, L., Williams, Z. J., Wilson, R. B. & Kuo, A., 30 Aug 2023, In: Cureus: Journal of Medical Science. 15, 8, 17 p., e44388.

Research output: Contribution to journal › Article › peer-review

Open Access

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“[I] don’t wanna just be like a cog in the machine”: Narratives of autism and skilled employment

Raymaker, D. M., Sharer, M., Maslak, J., Powers, L. E., Mcdonald, K. E., Kapp, S. K., Moura, I., Wallington, A. “. & Nicolaidis, C., 1 Jan 2023, In: Autism. 27, 1, p. 65–75 11 p.

Research output: Contribution to journal › Article › peer-review

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2022

The Autism Intervention Research Network on Physical Health (AIR-P) research agenda

Kuo, A. A., Hotez, E., Rosenau, K. A., Gragnani, C., Fernandes, P., Haley, M., Rudolph, D., Croen, L. A., Massolo, M. L., Graham-Holmes, L., Shattuck, P., Shea, L., Wilson, R. B., Martinez-Agosto, J. A., Brown, H. M., Dwyer, P. S., Gassner, D. L., Kapp, S. K., Ne’eman, A. & Ryan, J. G. & 6 others, Waisman, T., Williams, Z. J., DiBari, J. N., Foney, D. M., Ramos, L. R. & Kogan, M. D., 1 Apr 2022, In: Pediatrics. 149, Supp 4, 8 p., e2020049437D.

Research output: Contribution to journal › Article › peer-review

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The Autism Intervention Research Network on Physical Health Autistic Researcher Review Board

Brown, H. M., Dwyer, P. S., Gassner, D. L., Kapp, S. K., Ne’eman, A., Ryan, J. G., Waisman, T. C. & Williams, Z. J., 1 Apr 2022, In: Pediatrics. 149, Supp 4, 4 p., e2020049437F.

Research output: Contribution to journal › Article › peer-review

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24 Downloads (Pure)

2021

Exploring the career motivations, strengths, and challenges of autistic and non-autistic university students: insights from a participatory study

Cheriyan, C., Shevchuk-Hill, S., Riccio, A., Vincent, J., Kapp, S. K., Cage, E., Dwyer, P., Kofner, B., Attwood, H. & Gillespie-Lynch, K., 14 Oct 2021, In: Frontiers in Psychology. 12, 11 p., 719827.

Research output: Contribution to journal › Article › peer-review

Open Access

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114 Downloads (Pure)

2020

Avoiding ableist language: suggestions for autism researchers

Bottema-Beutel, K., Kapp, S. K., Lester, J. N., Sasson, N. J. & Hand, B. N., 2 Sept 2020, (Early online) In: Autism in Adulthood.

Research output: Contribution to journal › Article › peer-review

Open Access

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1193 Downloads (Pure)

Creating accessible survey instruments for use with autistic adults and people with intellectual disability: lessons learned and recommendations

Nicolaidis, C., Raymaker, D. M., McDonald, K. E., Lund, E. M., Leotti, S., Kapp, S. K., Katz, M., Beers, L. M., Kripke, C., Maslak, J., Hunter, M. & Zhen, K. Y., 19 Feb 2020, (Early online) In: Autism in Adulthood. 2, 1, 16 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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143 Downloads (Pure)

Developing the multidimensional visual scale assessing affect, anxiety, pride, and energy through a research partnership with autistic scholars

Riccio, A., Delos Santos, J., Kapp, S. K., Jordan, A., Denigris, D. & Gillespie-Lynch, K., 28 Feb 2020, (Early online) In: Autism in Adulthood.

Research output: Contribution to journal › Article › peer-review

Open Access

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490 Downloads (Pure)

Development and psychometric testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale

Nicolaidis, C., Schnider, G., Lee, J., Raymaker, D. M., Kapp, S. K., Croen, L. A., Urbanowicz, A. & Maslak, J., 28 Aug 2020, (Early online) In: Autism.

Research output: Contribution to journal › Article › peer-review

Open Access

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221 Downloads (Pure)

How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism?

Riccio, A., Kapp, S. K., Jordan, A., Dorelien, A. M. & Gillespie-Lynch, K., 24 Sept 2020, (Early online) In: Autism. 15 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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1070 Downloads (Pure)

Psychometric testing of a set of patient-reported instruments to assess healthcare interventions for autistic adults

Nicolaidis, C., Zhen, K. Y., Lee, J., Raymaker, D. M., Kapp, S. K., Croen, L. A., Urbanowicz, A., Maslak, J. & Scharer, M., 25 Oct 2020, (Early online) In: Autism.

Research output: Contribution to journal › Article › peer-review

Open Access

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220 Downloads (Pure)

What are replicable aspects of the Broader Autism Phenotype among college students? The answer is not reduced prosocial behaviors

Riccio, A., Kapp, S. K., Daou, N., Shane, J. & Gillespie-Lynch, K., 15 Jan 2020, In: Collabra: Psychology. 6, 1, 13 p., 6.

Research output: Contribution to journal › Article › peer-review

Open Access

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135 Downloads (Pure)

“Having all of your internal resources exhausted beyond measure and being left with no clean-up crew”: defining autistic burnout

Raymaker, D. M., Teo, A. R., Steckler, N. A., Lentz, B., Scharer, M., Delos Santos, A., Kapp, S. K., Hunter, M., Joyce, A. & Nicolaidis, C., 10 Jun 2020, In: Autism in Adulthood. 2, 2, p. 1-12 12 p., 0.

Research output: Contribution to journal › Article › peer-review

Open Access

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374 Downloads (Pure)

2019

Deconstructing diagnosis: multi-disciplinary perspectives on a diagnostic tool

Milton, D., Kapp, S. K., Bovell, V., Timimi, S. & Russell, G., 22 Jun 2019, In: Autonomy, the Critical Journal of Autism Studies. 1, 6

Research output: Contribution to journal › Article › peer-review

Open Access

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502 Downloads (Pure)

Development of the AASPIRE web accessibility guidelines for autistic web users

Raymaker, D. M., Kapp, S. K., Mcdonald, K. E., Weiner, M., Ashkenazy, E. & Nicolaidis, C., 13 Apr 2019, In: Autism in Adulthood. 1, 2, p. 146-157 12 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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215 Downloads (Pure)

Factors underlying cross-cultural differences in stigma toward autism among college students in Lebanon and the United States

Gillespie-Lynch, K., Daou, N., Sanchez-Ruiz, M.-J., Kapp, S. K., Obeid, R., Brooks, P. J., Someki, F., Silton, N. & Abi-Habib, R., 1 Nov 2019, In: Autism. 23, 8, p. 1993-2006 14 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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792 Downloads (Pure)

How social deficit models exacerbate the medical model: autism as case in point

Kapp, S., 6 Sept 2019, In: Autism Policy & Practice. 2, 1, p. 3-28

Research output: Contribution to journal › Article › peer-review

Open Access

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5037 Downloads (Pure)

Is disclosing an autism spectrum disorder in school associated with reduced stigmatization?

White, R., Barreto, M., Harrington, J., Kapp, S. K., Hayes, J. & Russell, G., 27 Nov 2019, (Early online) In: Autism.

Research output: Contribution to journal › Article › peer-review

Open Access

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261 Downloads (Pure)

Mapping the autistic advantage from the accounts of adults diagnosed with autism: a qualitative study

Russell, G., Kapp, S. K., Elliott, D., Elphick, C., Gwernan-Jones, R. & Owens, C., 1 Jun 2019, In: Autism in Adulthood. 1, 2, p. 124-133 10 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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204 Downloads (Pure)

The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants

Nicolaidis, C., Raymaker, D., Kapp, S. K., Baggs, A., Ashkenazy, E., McDonald, K., Weiner, M., Maslak, J., Hunter, M. & Joyce, A., 1 Nov 2019, In: Autism. 23, 8, p. 2007-2019

Research output: Contribution to journal › Article › peer-review

Open Access

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551 Downloads (Pure)

‘People should be allowed to do what they like’: autistic adults’ views and experiences of stimming

Kapp, S. K., Steward, R., Crane, L., Elliott, D., Elphick, C., Pellicano, E. & Russell, G., 1 Oct 2019, In: Autism. 23, 7, p. 1782-1792 11 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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237 Downloads (Pure)

2018

Social support, well-being, and quality of life among individuals on the autism spectrum

Kapp, S. K., 1 Apr 2018, In: Pediatrics. 141, Supplement 4, p. S362-S368 7 p., e20164300.

Research output: Contribution to journal › Article › peer-review

Open Access

12 Downloads (Pure)

2017

Whose expertise is it? Evidence for autistic adults as critical autism experts

Gillespie-Lynch, K., Kapp, S. K., Brooks, P. J., Pickens, J. & Schwartzman, B., 28 Mar 2017, In: Frontiers in Psychology . 8, 438.

Research output: Contribution to journal › Article › peer-review

Open Access

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189 Downloads (Pure)

2016

Can the five factor model of personality account for the variability of autism symptom expression? Multivariate approaches to behavioral phenotyping in adult autism spectrum disorder

Schwartzman, B. C., Wood, J. J. & Kapp, S. K., 1 Jan 2016, In: Journal of Autism and Developmental Disorders. 46, 1, p. 253-272 20 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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1694 Downloads (Pure)

The development and evaluation of an online healthcare toolkit for autistic adults and their primary care providers

Nicolaidis, C., Raymaker, D., Mcdonald, K., Kapp, S., Weiner, M., Ashkenazy, E., Gerrity, M., Kripke, C., Platt, L. & Baggs, A., 1 Oct 2016, In: Journal of General Internal Medicine. 31, 10, p. 1180-1189

Research output: Contribution to journal › Article › peer-review

Open Access

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161 Downloads (Pure)

2015

A randomized controlled trial to improve social skills in young adults with autism spectrum disorder: The UCLA PEERS® Program

Laugeson, E. A., Gantman, A., Kapp, S. K., Orenski, K. & Ellingsen, R., 1 Dec 2015, In: Journal of Autism and Developmental Disorders. 45, 12, p. 3978-3989

Research output: Contribution to journal › Article › peer-review

Open Access

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1564 Downloads (Pure)

Changing college students’ conceptions of autism: an online training to increase knowledge and decrease stigma

Gillespie-Lynch, K., Brooks, P. J., Someki, F., Obeid, R., Shane-Simpson, C., Kapp, S. K., Daou, N. & Smith, D. S., 1 Aug 2015, In: Journal of Autism and Developmental Disorders. 45, 8, p. 2553-2566 14 p.

Research output: Contribution to journal › Article › peer-review

Open Access

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1680 Downloads (Pure)

“Respect the way I need to communicate with you”: healthcare experiences of adults on the autism spectrum

Nicolaidis, C., Raymaker, D. M., Ashkenazy, E., McDonald, K. E., Dern, S., Baggs, A. E. V., Kapp, S. K., Weiner, M. & Boisclair, W. C., 1 Oct 2015, In: Autism. 19, 7, p. 824-831

Research output: Contribution to journal › Article › peer-review

Open Access

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319 Downloads (Pure)

2014

Intersections between the autism spectrum and the internet: perceived benefits and preferred functions of computer-mediated communication

Gillespie-Lynch, K., Kapp, S. K., Shane-Simpson, C., Smith, D. S. & Hutman, T., 1 Dec 2014, In: Intellectual and Developmental Disabilities. 52, 6, p. 456-469

Research output: Contribution to journal › Article › peer-review

Open Access

2013

Deficit, difference, or both? Autism and neurodiversity

Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E. & Hutman, T., 1 Jan 2013, In: Developmental Psychology. 49, 1, p. 59-71

Research output: Contribution to journal › Article › peer-review

Open Access

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12492 Downloads (Pure)

Empathizing with sensory and movement differences: moving toward sensitive understanding of autism

Kapp, S. K., 24 May 2013, In: Frontiers in Integrative Neuroscience. 7, 38.

Research output: Contribution to journal › Article › peer-review

Open Access

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103 Downloads (Pure)

2012

Social skills training for young adults with high-functioning autism spectrum disorders: a randomized controlled pilot study

Gantman, A., Kapp, S. K., Orenski, K. & Laugeson, E. A., 1 Jun 2012, In: Journal of Autism and Developmental Disorders. 42, 6, p. 1094-1103

Research output: Contribution to journal › Article › peer-review

Open Access

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2916 Downloads (Pure)

Steven Kapp

Research output

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