Methods - Following a systematic search of the literature, included qualitative studies were assessed by two independent reviewers for methodological quality. Data were extracted and pooled using the Joanna Briggs Institute Qualitative Assessment and Review Instrument (QARI). Findings were synthesized using the Joanna Briggs Institute approach to qualitative synthesis by meta-aggregation.
Results - Seventeen papers were critically appraised, with 13 meeting the inclusion criteria. Participants were mostly of South Asians of Indian background; followed by Pakistani with a few Sri Lankans. Missing South Asian countries from the current evidence base included those from Bangladesh, Bhutan, Maldives, and Nepal. Three meta-synthesis themes emerged from the analysis: (1) a poor awareness and understanding of dementia, (2) the experience of caregiving, and (3) the attitudes toward dementia care provision.
Conclusions - A consistent message from this qualitative synthesis was the limited knowledge and understanding of dementia amongst the South Asians. Whilst symptoms of dementia such as ‘memory loss’ were believed to be a part of a normal ageing process, some South Asian carers viewed dementia as demons or God’s punishments. Most studies reported that many South Asians were explicit in associating stigmas with dementia.
FingerprintDive into the research topics of 'Awareness and understanding of dementia in South Asians: a synthesis of qualitative evidence'. Together they form a unique fingerprint.
Data availability statement for 'Awareness and understanding of dementia in South Asians: a synthesis of qualitative evidence'.
Hossain, M. S. (Creator), Crossland, J. (Creator), Stores, R. (Creator), Dewey, A. (Creator) & Hakak, Y. (Creator), SAGE Publications Inc., 8 Oct 2018