Everybody s***s: how defecation stigma reduces care quality in dementia

Leah Lily Fullegar, Dawn Goodall

    Research output: Contribution to journalArticlepeer-review

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    Abstract

    Purpose: This paper aims to raise awareness of the ways in which faecal incontinence can impact the provision of dementia care by examining this through the lens of stigma.

    Design/methodology/approach: This paper contains a scoping review of available literature relating to faecal incontinence, dementia and stigma.

    Findings: Literature was organised into three themes: the origins of the stigma, the purpose of stigma and the care context.

    Research limitations/implications: Limitations of this paper include the lack of literature discussing faecal incontinence and dementia in relation to stigma.

    Practical implications: Stigma regarding faecal incontinence has the potential to impact quality of life of people with a dementia and contributes towards the invisible work of unqualified care workers.

    Originality/value: Stigma and faecal incontinence have only a small amount of research around them in residential dementia care.
    Original languageEnglish
    Pages (from-to)79-87
    Number of pages9
    JournalQuality in Ageing and Older Adults
    Volume21
    Issue number2
    Early online date20 May 2020
    DOIs
    Publication statusPublished - 15 Jul 2020

    Keywords

    • residential care
    • care staff
    • dementia
    • stigma
    • dementia care
    • taboo
    • care workers
    • faecal incontinence
    • residential home

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