Everybody s***s: how defecation stigma reduces care quality in dementia

Leah Lily Fullegar, Dawn Goodall

Research output: Contribution to journalArticlepeer-review

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Purpose: This paper aims to raise awareness of the ways in which faecal incontinence can impact the provision of dementia care by examining this through the lens of stigma.

Design/methodology/approach: This paper contains a scoping review of available literature relating to faecal incontinence, dementia and stigma.

Findings: Literature was organised into three themes: the origins of the stigma, the purpose of stigma and the care context.

Research limitations/implications: Limitations of this paper include the lack of literature discussing faecal incontinence and dementia in relation to stigma.

Practical implications: Stigma regarding faecal incontinence has the potential to impact quality of life of people with a dementia and contributes towards the invisible work of unqualified care workers.

Originality/value: Stigma and faecal incontinence have only a small amount of research around them in residential dementia care.
Original languageEnglish
Pages (from-to)79-87
Number of pages9
JournalQuality in Ageing and Older Adults
Issue number2
Early online date20 May 2020
Publication statusPublished - 15 Jul 2020


  • residential care
  • care staff
  • dementia
  • stigma
  • dementia care
  • taboo
  • care workers
  • faecal incontinence
  • residential home

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