Exploring the meaning of home for family caregivers of people with dementia

Dia Soilemezi; Amy Drahota-Towns; John Crossland; Rebecca Stores; Alan Costall

doi:10.1016/j.jenvp.2017.03.007

Exploring the meaning of home for family caregivers of people with dementia

Dia Soilemezi, Amy Drahota-Towns, John Crossland, Rebecca Stores, Alan Costall

Research output: Contribution to journal › Article › peer-review

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Abstract

The home remains the preferred site for ageing and care provision, yet its role and meaning for caregivers remains under-studied. Thirteen co-resident family caregivers of people with dementia were interviewed about the personal meaning of their home environment. Interviews were recorded, transcribed and analysed using thematic analysis. The findings revealed that ‘home is everything’ for caregivers and included two major themes, each with two sub-themes: 1. The different meanings of home: 1.1 home as a secure haven, and 1.2 home looks like a hospital, feels like as a prison. 2. Perceived impact of home: to move or not to move? 2.1 need for relocation, and 2.2 staying in place but redefine the home environment. The findings provide insights into the meaning of home and ways it may change, and identify areas for further exploration and also practical support for co-resident caregivers in their own homes.

Original language	English
Pages (from-to)	70-81
Number of pages	12
Journal	Journal of Environmental Psychology
Volume	51
Early online date	15 Mar 2017
DOIs	https://doi.org/10.1016/j.jenvp.2017.03.007
Publication status	Published - 1 Aug 2017

Keywords

home environment
family caregivers
aging in place
dementia
meaning of home
qualitative study

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10.1016/j.jenvp.2017.03.007

Exploring the meaning of homeAccepted author manuscript (Post-print), 396 KBLicence: CC BY-NC-ND

Disabling spaces and spatial strategies: feminist approaches to the home environment of family caregivers of people with dementia
Kallitsis, P., Soilemezi, D. & Maguire-Elliot, A., 25 Nov 2019, In: Home Cultures. 15, 3, p. 265-287 23 p.
Research output: Contribution to journal › Article › peer-review

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Cite this

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title = "Exploring the meaning of home for family caregivers of people with dementia",

abstract = "The home remains the preferred site for ageing and care provision, yet its role and meaning for caregivers remains under-studied. Thirteen co-resident family caregivers of people with dementia were interviewed about the personal meaning of their home environment. Interviews were recorded, transcribed and analysed using thematic analysis. The findings revealed that {\textquoteleft}home is everything{\textquoteright} for caregivers and included two major themes, each with two sub-themes: 1. The different meanings of home: 1.1 home as a secure haven, and 1.2 home looks like a hospital, feels like as a prison. 2. Perceived impact of home: to move or not to move? 2.1 need for relocation, and 2.2 staying in place but redefine the home environment. The findings provide insights into the meaning of home and ways it may change, and identify areas for further exploration and also practical support for co-resident caregivers in their own homes.",

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AU - Soilemezi, Dia

AU - Drahota-Towns, Amy

AU - Crossland, John

AU - Stores, Rebecca

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PY - 2017/8/1

Y1 - 2017/8/1

N2 - The home remains the preferred site for ageing and care provision, yet its role and meaning for caregivers remains under-studied. Thirteen co-resident family caregivers of people with dementia were interviewed about the personal meaning of their home environment. Interviews were recorded, transcribed and analysed using thematic analysis. The findings revealed that ‘home is everything’ for caregivers and included two major themes, each with two sub-themes: 1. The different meanings of home: 1.1 home as a secure haven, and 1.2 home looks like a hospital, feels like as a prison. 2. Perceived impact of home: to move or not to move? 2.1 need for relocation, and 2.2 staying in place but redefine the home environment. The findings provide insights into the meaning of home and ways it may change, and identify areas for further exploration and also practical support for co-resident caregivers in their own homes.

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KW - home environment

KW - family caregivers

KW - aging in place

KW - dementia

KW - meaning of home

KW - qualitative study

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DO - 10.1016/j.jenvp.2017.03.007

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JO - Journal of Environmental Psychology

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Exploring the meaning of home for family caregivers of people with dementia

Abstract

Keywords

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Research output

Disabling spaces and spatial strategies: feminist approaches to the home environment of family caregivers of people with dementia

Cite this