The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus

Craig A. Williams, Alan R. Barker, Sarah Denford, Samantha B. van Beurden, Mayara S. Bianchim, Jessica E. Caterini, Narelle S. Cox, Kelly A. Mackintosh, Melitta A. McNarry, Sarah Rand, Jane E. Schneiderman, Greg D. Wells, Peter Anderson, Daniel Beever, Z. Beverley, Ronan Buckley, Brenda Button, Adam J. Causer, Máire Curran, Tiffany J. DwyerWarren Gordon, Mathieu Gruet, Ryan A. Harris, Elpis Hatziagorou, HJ (Erik) Hulzebos, Asterios Kampouras, Lisa Morrison, Marietta N. Cámara, Clare M. Reilly, Abbey Sawyer, Zoe L. Saynor, James Shelley, Grace Spencer, Gemma E. Stanford, Don S. Urquhart, Rachel Young, Owen W. Tomlinson

Research output: Contribution to journalArticlepeer-review

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Abstract

Background: The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.

Method: On 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.

Results: The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.

Conclusion: This consensus can be used to support health promotion by relevant stakeholders for people with CF.
Original languageEnglish
Number of pages11
JournalChronic Respiratory Disease
Volume19
Early online date6 Sep 2022
DOIs
Publication statusEarly online - 6 Sep 2022

Keywords

  • respiratory disease
  • lifestyyle
  • health
  • clinical practice

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