TY - CHAP
T1 - Unmet need, epistemic injustice and early death
T2 - how social policy for Autistic adults in England and Wales fails to slay Beveridge’s Five Giants
AU - Grant, Aimee
AU - Williams, Gemma Louise
AU - Williams, Kathryn
AU - Woods, Richard
PY - 2023/6/30
Y1 - 2023/6/30
N2 - Around 2% of people are Autistic, but to date the impact of being Autistic on social policy receipt has not yet been considered. We, a group of Autistic academics, consider epistemic injustice, where Autistic input is excluded from the policy making process, to be a core part of Autistic disablement. We consider the impact of this using a modern iteration of Beveridge’s Five Giants: health (disease), education (ignorance), employment (idleness), poverty (want), and housing (squalor). Starting with lack of access to diagnosis and healthcare for co-occurring conditions, we identify policies that fail to account for known Autistic needs in each policy area. These failures have a cumulative impact throughout the life course; lack of accommodations within education leads to less likelihood of securing accessible employment, and greater reliance on government financial support and housing assistance. Furthermore, this impact will be increased for Autistic people who are multiply marginalised due to intersectionality. We propose changes to the policy-making process to ensure that it reflects Autistic needs and realities, allowing for the emancipation of Autistic people. We theorise that if this were to happen, the Autistic suicide rate, which is nine times that of non-Autistic people, would decline.
AB - Around 2% of people are Autistic, but to date the impact of being Autistic on social policy receipt has not yet been considered. We, a group of Autistic academics, consider epistemic injustice, where Autistic input is excluded from the policy making process, to be a core part of Autistic disablement. We consider the impact of this using a modern iteration of Beveridge’s Five Giants: health (disease), education (ignorance), employment (idleness), poverty (want), and housing (squalor). Starting with lack of access to diagnosis and healthcare for co-occurring conditions, we identify policies that fail to account for known Autistic needs in each policy area. These failures have a cumulative impact throughout the life course; lack of accommodations within education leads to less likelihood of securing accessible employment, and greater reliance on government financial support and housing assistance. Furthermore, this impact will be increased for Autistic people who are multiply marginalised due to intersectionality. We propose changes to the policy-making process to ensure that it reflects Autistic needs and realities, allowing for the emancipation of Autistic people. We theorise that if this were to happen, the Autistic suicide rate, which is nine times that of non-Autistic people, would decline.
UR - https://policy.bristoluniversitypress.co.uk/social-policy-review-35
U2 - 10.51952/9781447369219.ch012
DO - 10.51952/9781447369219.ch012
M3 - Chapter (peer-reviewed)
SN - 9781447369189
T3 - Social Policy Review
SP - 239
EP - 257
BT - Social Policy Review 35 Analysis and Debate in Social Policy, 2023
A2 - Cefalo, Ruggero
A2 - Rose, Marcia
A2 - Jolly, Andy
PB - Bristol University Press
ER -