What personal health records are people with long-term conditions using?

Research output: Chapter in Book/Report/Conference proceedingConference contribution

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Personal health records (PHR) are online systems that include collections of pa-tients’ healthcare and medical data, which enable patients to share, organize and manage these data according to their own views. National Health Service (NHS) policy suggests that increasing usage of electronic PHR by patients will result in cost savings and improved public health, especially for people with long-term conditions. This study is part of a larger research project, the ePHRma study.
A prominent question that is the aim of this paper was raised by healthcare pro-viders from the ePHRma study was what are the participants’ PHR preferences?
This study conducted 42 interviews and surveys with adults with heart disease, asthma and diabetes in order to answer the research questions. The people with diabetes cohort has 17 participants, the heart disease cohort has 13 and the asthma cohort has 12 participants. Most of the people with diabetes were using the Free-style Libre, followed by MyFitnessPal. In total 14 unique PHRs were used by the 17 participants. Most of the people with heart disease were using the Fitbit, followed by Medisafe. In total 8 unique PHRs were used by the 13 participants. Most of the people with asthma were using the Fitbit, followed by Samsung Health. In total 16 PHRs were used by the 12 participants, with 10 of them being unique. The study was given REC/HRA favourable ethical opinion.
Original languageEnglish
Title of host publicationHCI International 2022 Posters
Subtitle of host publication24th International Conference on Human-Computer Interaction, HCII 2022, Virtual Event, June 26 – July 1, 2022, Proceedings, Part I
EditorsConstantine Stephanidis, Margherita Antona, Stavroula Ntoa
ISBN (Electronic)9783031064173
ISBN (Print)9783031064166
Publication statusPublished - 16 Jun 2022
Event24th International Conference on Human-Computer Interaction: HCI 2022 - Gothenburg, Sweden
Duration: 26 Jun 20221 Jul 2022

Publication series

NameCommunications in Computer and Information Science
ISSN (Print)1865-0929
ISSN (Electronic)1865-0937


Conference24th International Conference on Human-Computer Interaction
Internet address


  • Personal health records
  • Long-term conditions
  • Design features


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