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The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice

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The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice. / Georgiou, Andrew; Magrabi, Farah; Hypponen, Hannele; Wong, Zoie Shui Yee; Nykänen, Pirkko; Scott, Philip J.; Ammenwerth, Elske; Rigby, Michael.

In: IMIA Yearbook of Medical Informatics, Vol. 27, No. 1, 01.08.2018, p. 25-28.

Research output: Contribution to journalArticlepeer-review

Harvard

Georgiou, A, Magrabi, F, Hypponen, H, Wong, ZSY, Nykänen, P, Scott, PJ, Ammenwerth, E & Rigby, M 2018, 'The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice', IMIA Yearbook of Medical Informatics, vol. 27, no. 1, pp. 25-28. https://doi.org/10.1055/s-0038-1641194

APA

Georgiou, A., Magrabi, F., Hypponen, H., Wong, Z. S. Y., Nykänen, P., Scott, P. J., Ammenwerth, E., & Rigby, M. (2018). The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice. IMIA Yearbook of Medical Informatics, 27(1), 25-28. https://doi.org/10.1055/s-0038-1641194

Vancouver

Georgiou A, Magrabi F, Hypponen H, Wong ZSY, Nykänen P, Scott PJ et al. The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice. IMIA Yearbook of Medical Informatics. 2018 Aug 1;27(1):25-28. https://doi.org/10.1055/s-0038-1641194

Author

Georgiou, Andrew ; Magrabi, Farah ; Hypponen, Hannele ; Wong, Zoie Shui Yee ; Nykänen, Pirkko ; Scott, Philip J. ; Ammenwerth, Elske ; Rigby, Michael. / The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice. In: IMIA Yearbook of Medical Informatics. 2018 ; Vol. 27, No. 1. pp. 25-28.

Bibtex

@article{97d45343014b470e82dd91b786d81e8d,
title = "The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice",
abstract = "Objectives - The paper draws attention to: i) key considerations involving the confidentiality, privacy, and security of shared data; and ii) the requirements needed to build collaborative arrangements encompassing all stakeholders with the goal of ensuring safe, secure, and quality use of shared data.Method - A narrative review of existing research and policy approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Care and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems.Results - The technological ability to merge, link, re-use, and exchange data has outpaced the establishment of policies, procedures, and processes to monitor the ethics and legality of shared use of data. Questions remain about how to guarantee the security of shared data, and how to establish and maintain public trust across large-scale shared data enterprises. This paper identifies the importance of data governance frameworks (incorporating engagement with all stakeholders) to underpin the management of the ethics and legality of shared data use. The paper also provides some key considerations for the establishment of national approaches and measures to monitor compliance with best practice.Conclusion - Data sharing endeavours can help to underpin new collaborative models of health care which provide shared information, engagement, and accountability amongst all stakeholders. We believe that commitment to rigorous evaluation and stakeholder engagement will be critical to delivering health data benefits and the establishment of collaborative models of health care into the future.",
author = "Andrew Georgiou and Farah Magrabi and Hannele Hypponen and Wong, {Zoie Shui Yee} and Pirkko Nyk{\"a}nen and Scott, {Philip J.} and Elske Ammenwerth and Michael Rigby",
year = "2018",
month = aug,
day = "1",
doi = "10.1055/s-0038-1641194",
language = "English",
volume = "27",
pages = "25--28",
journal = "IMIA Yearbook of Medical Informatics",
issn = "0943-4747",
publisher = "International Medical Informatics Association",
number = "1",

}

RIS

TY - JOUR

T1 - The safe and effective use of shared data underpinned by stakeholder engagement and evaluation practice

AU - Georgiou, Andrew

AU - Magrabi, Farah

AU - Hypponen, Hannele

AU - Wong, Zoie Shui Yee

AU - Nykänen, Pirkko

AU - Scott, Philip J.

AU - Ammenwerth, Elske

AU - Rigby, Michael

PY - 2018/8/1

Y1 - 2018/8/1

N2 - Objectives - The paper draws attention to: i) key considerations involving the confidentiality, privacy, and security of shared data; and ii) the requirements needed to build collaborative arrangements encompassing all stakeholders with the goal of ensuring safe, secure, and quality use of shared data.Method - A narrative review of existing research and policy approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Care and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems.Results - The technological ability to merge, link, re-use, and exchange data has outpaced the establishment of policies, procedures, and processes to monitor the ethics and legality of shared use of data. Questions remain about how to guarantee the security of shared data, and how to establish and maintain public trust across large-scale shared data enterprises. This paper identifies the importance of data governance frameworks (incorporating engagement with all stakeholders) to underpin the management of the ethics and legality of shared data use. The paper also provides some key considerations for the establishment of national approaches and measures to monitor compliance with best practice.Conclusion - Data sharing endeavours can help to underpin new collaborative models of health care which provide shared information, engagement, and accountability amongst all stakeholders. We believe that commitment to rigorous evaluation and stakeholder engagement will be critical to delivering health data benefits and the establishment of collaborative models of health care into the future.

AB - Objectives - The paper draws attention to: i) key considerations involving the confidentiality, privacy, and security of shared data; and ii) the requirements needed to build collaborative arrangements encompassing all stakeholders with the goal of ensuring safe, secure, and quality use of shared data.Method - A narrative review of existing research and policy approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Care and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems.Results - The technological ability to merge, link, re-use, and exchange data has outpaced the establishment of policies, procedures, and processes to monitor the ethics and legality of shared use of data. Questions remain about how to guarantee the security of shared data, and how to establish and maintain public trust across large-scale shared data enterprises. This paper identifies the importance of data governance frameworks (incorporating engagement with all stakeholders) to underpin the management of the ethics and legality of shared data use. The paper also provides some key considerations for the establishment of national approaches and measures to monitor compliance with best practice.Conclusion - Data sharing endeavours can help to underpin new collaborative models of health care which provide shared information, engagement, and accountability amongst all stakeholders. We believe that commitment to rigorous evaluation and stakeholder engagement will be critical to delivering health data benefits and the establishment of collaborative models of health care into the future.

UR - http://www.scopus.com/inward/record.url?scp=85053010408&partnerID=8YFLogxK

U2 - 10.1055/s-0038-1641194

DO - 10.1055/s-0038-1641194

M3 - Article

C2 - 29681039

AN - SCOPUS:85053010408

VL - 27

SP - 25

EP - 28

JO - IMIA Yearbook of Medical Informatics

JF - IMIA Yearbook of Medical Informatics

SN - 0943-4747

IS - 1

ER -

ID: 11555560