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Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies

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Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies. / Teasdale, Emma; Muller, Ingrid; Sivyer, Katy; Ghio, Daniela; Greenwell, Kate; Wilczynska, Sylvia; Roberts, Amanda; Ridd, Matthew J.; Francis, Nathan; Yardley, Lucy; Thomas, Kim; Santer, Miriam.

In: British Journal Of Dermatology, 12.06.2020.

Research output: Contribution to journalArticle

Harvard

Teasdale, E, Muller, I, Sivyer, K, Ghio, D, Greenwell, K, Wilczynska, S, Roberts, A, Ridd, MJ, Francis, N, Yardley, L, Thomas, K & Santer, M 2020, 'Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies', British Journal Of Dermatology. https://doi.org/10.1111/bjd.19299

APA

Teasdale, E., Muller, I., Sivyer, K., Ghio, D., Greenwell, K., Wilczynska, S., Roberts, A., Ridd, M. J., Francis, N., Yardley, L., Thomas, K., & Santer, M. (2020). Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies. British Journal Of Dermatology. https://doi.org/10.1111/bjd.19299

Vancouver

Teasdale E, Muller I, Sivyer K, Ghio D, Greenwell K, Wilczynska S et al. Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies. British Journal Of Dermatology. 2020 Jun 12. https://doi.org/10.1111/bjd.19299

Author

Teasdale, Emma ; Muller, Ingrid ; Sivyer, Katy ; Ghio, Daniela ; Greenwell, Kate ; Wilczynska, Sylvia ; Roberts, Amanda ; Ridd, Matthew J. ; Francis, Nathan ; Yardley, Lucy ; Thomas, Kim ; Santer, Miriam. / Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies. In: British Journal Of Dermatology. 2020.

Bibtex

@article{e84796a1b20f404cb0ed2639010580fe,
title = "Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies",
abstract = "Background: The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people{\textquoteright}s perceptions of eczema and eczema treatments.Objectives: We sought to systematically review and thematically synthesise qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema.Methods: We searched MEDLINE, PsycINFO, CINAHL and EMBASE from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema, eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals{\textquoteright} views.Results: We synthesised 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: 1) Eczema not viewed as long‐term condition, 2) Significant psychosocial impact not acknowledged by others, 3) Hesitancy (patient/carer uncertainty) about eczema treatments and 4) Insufficient information and advice. Our findings suggest people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others.Conclusions: Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a {\textquoteleft}control not cure{\textquoteright} message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.",
author = "Emma Teasdale and Ingrid Muller and Katy Sivyer and Daniela Ghio and Kate Greenwell and Sylvia Wilczynska and Amanda Roberts and Ridd, {Matthew J.} and Nathan Francis and Lucy Yardley and Kim Thomas and Miriam Santer",
year = "2020",
month = jun,
day = "12",
doi = "10.1111/bjd.19299",
language = "English",
journal = "British Journal Of Dermatology",
issn = "0007-0963",
publisher = "Wiley-Blackwell",

}

RIS

TY - JOUR

T1 - Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies

AU - Teasdale, Emma

AU - Muller, Ingrid

AU - Sivyer, Katy

AU - Ghio, Daniela

AU - Greenwell, Kate

AU - Wilczynska, Sylvia

AU - Roberts, Amanda

AU - Ridd, Matthew J.

AU - Francis, Nathan

AU - Yardley, Lucy

AU - Thomas, Kim

AU - Santer, Miriam

PY - 2020/6/12

Y1 - 2020/6/12

N2 - Background: The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments.Objectives: We sought to systematically review and thematically synthesise qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema.Methods: We searched MEDLINE, PsycINFO, CINAHL and EMBASE from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema, eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals’ views.Results: We synthesised 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: 1) Eczema not viewed as long‐term condition, 2) Significant psychosocial impact not acknowledged by others, 3) Hesitancy (patient/carer uncertainty) about eczema treatments and 4) Insufficient information and advice. Our findings suggest people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others.Conclusions: Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a ‘control not cure’ message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.

AB - Background: The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments.Objectives: We sought to systematically review and thematically synthesise qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema.Methods: We searched MEDLINE, PsycINFO, CINAHL and EMBASE from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema, eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals’ views.Results: We synthesised 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: 1) Eczema not viewed as long‐term condition, 2) Significant psychosocial impact not acknowledged by others, 3) Hesitancy (patient/carer uncertainty) about eczema treatments and 4) Insufficient information and advice. Our findings suggest people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others.Conclusions: Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a ‘control not cure’ message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.

U2 - 10.1111/bjd.19299

DO - 10.1111/bjd.19299

M3 - Article

JO - British Journal Of Dermatology

JF - British Journal Of Dermatology

SN - 0007-0963

ER -

ID: 21573704